Un Viaje Inesperado: Cuidarte a Ti Misma Cuando Cuidas a Los Demás / The Unexpected Journey - Paperback
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El testimonio íntimo de Emma Heming Willis sobre su vida con Bruce Willis tras el diagnóstico de demencia, convertido en una guía práctica y esperanzadora para millones de cuidadores en todo el mundo.
Cuando cuidas de todos, quién cuida de ti?
Bruce Willis tiene demencia frontotemporal. Y, de repente, Emma ya no es solo su mujer: es su cuidadora. Qué ocurre con la persona que sostiene a todos cuando todo gira en torno al enfermo?
Un viaje inesperado es la historia de Emma Heming Willis aprendiendo a acompañar a Bruce sin borrarse a sí misma. Con una voz cercana cuenta el miedo, la culpa, el agotamiento y también esos pequeños descubrimientos que le permiten seguir de pie.
Entre momentos íntimos, la experiencia de otros cuidadores y la mirada de especialistas, este libro ofrece algo poco habitual: permiso para no poder con todo, pautas para pedir ayuda a tiempo, ideas concretas para proteger tu salud mental y formas de encontrar respiro, e incluso algo de alegría, en medio del caos del cuidado.
ENGLISH DESCRIPTION
An intimate account by Emma Heming Willis of her life with Bruce Willis after his dementia diagnosis, transformed into a practical and hopeful guide for millions of caregivers around the world.
When you take care of everyone, who takes care of you?
Bruce Willis has frontotemporal dementia. And suddenly, Emma is no longer just his wife: she is his caregiver. What happens to the person who holds everything together when everything revolves around the one who is ill?
The Unexpected Journey tells the story of Emma Heming Willis learning how to care for Bruce without losing herself in the process. In a warm and honest voice, she shares fear, guilt, exhaustion, and also the small discoveries that allow her to keep going.
Through intimate moments, the experiences of other caregivers, and insights from specialists, this book offers something rare: permission not to be able to do it all, guidance on asking for help in time, concrete ideas to protect your mental health, and ways to find relief and even moments of joy in the midst of the chaos of caregiving.
Emma Heming Willis es madre, madrastra, esposa, activista y cofundadora de Make Time Wellness, una marca dedicada a la salud cerebral de las mujeres. Tras el diagnóstico de demencia frontotemporal de su marido, Bruce Willis, se convirtió en una voz apasionada en defensa de los cuidadores y las familias que afrontan enfermedades neurodegenerativas. A través de su testimonio y su labor de concienciación, Emma espera ayudar a que otras personas se sientan menos solas en el camino de los cuidados. Un viaje inesperado es su primer libro. Actualmente vive en Los Ángeles.
Emma Heming Willis is a mother, stepmother, wife, activist, and co-founder of Make Time Wellness, a brand dedicated to women's brain health. After her husband Bruce Willis was diagnosed with frontotemporal dementia, she became a passionate advocate for caregivers and families facing neurodegenerative diseases. Through her testimony and awareness work, Emma hopes to help others feel less alone on the caregiving journey. The Unexpected Journey
is her first book. She currently lives in Los Angeles.
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