So I Have Sickle Cell Disease - Paperback

Nsofwa, Agnes: - Agnes Nsofwa is an Advocacy Consultant, a Strategist and Global Health Advocate. Through her personal experience as a caregiver to a child born with Sickle Cell Disease, she founded Australian Sickle Cell Advocacy Inc, a not-for-profit organisation supporting families impacted by Sickle Cell Disease in Australia. After chasing a cure in three different states, their daughter was cured from Sickle Cell Disease through a bone marrow transplant, becoming the first child to receive a bone marrow transplant for homozygous sickle cell disease SS at the Royal Children's Hospital in Melbourne Australia. Agnes is also the founder of Amplify Sickle Cell Voices International Inc, a not-for-profit organisation whose aim is to empower people impacted by sickle cell disease globally by using their voice to normalise sickle cell disease discussions. Agnes is also the creator of Aggie's Health Talks Podcast a platform promoting health discussions.