The subject of this book revolves around the life of my wife, Maureen, who died October 2019. It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted.
While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.
The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.
Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease.
